PRADER-WILLI
COLLABORATION
Transforming Lives of People With PWS
& Empowering All Those Responsible For Them
& Empowering All Those Responsible For Them
Caregivers of individuals with Prader-Willi Syndrome (PWS) face a wide range of daily challenges — from behavior management to food security to emotional regulation. Addressing these challenges requires more than intuition or trial-and-error. It requires structure.
The Prader-Willi Optimization System (PWOS) is a structured, experience-based framework developed to help caregivers navigate PWS care with greater clarity and consistency.
Created by Dr. Larry Genstil, Ph.D., based on more than 45 years of hands-on experience, PWOS organizes PWS care into six core pillars and 26 practical modules. This approach is grounded in clinical insight, educational programming, and real-world application across home, school, and residential settings.
The PWOS system is currently being adapted into accessible training formats for families, professionals, and caregivers. A full free course and digital community are coming soon.
Dr. Larry Genstil is a leading specialist in Prader-Willi Syndrome (PWS) care, with over 45 years of dedicated experience. As a psychologist specializing in PWS, Dr. Genstil has worked directly with individuals with PWS, managed a group home for individuals with PWS for 27 years, and serves as the psychologist of the Multi-Disciplinary PWS Clinic at Sha'are Zedek Medical Center in Jerusalem, Israel since 1996.
An active member of the International Prader-Willi Syndrome Organization’s (IPWSO) Professional Providers and Caregivers Board (PPCB) since 2010, Dr. Genstil has presented at international conferences and contributed extensively to the field. His practical experience, combined with his educational background in psychology and rehabilitation counseling, has shaped his innovative approaches to PWS caregiving.
Dr. Larry Genstil is a leading specialist in Prader-Willi Syndrome (PWS) care, with over 45 years of dedicated experience. As a psychologist specializing in PWS, Dr. Genstil has worked directly with individuals with PWS, managed a group home for individuals with PWS for 27 years, and serves as the psychologist of the Multi-Disciplinary PWS Clinic at Sha'are Zedek Medical Center in Jerusalem, Israel since 1996.
An active member of the International Prader-Willi Syndrome Organization’s (IPWSO) Professional Providers and Caregivers Board (PPCB) since 2010, Dr. Genstil has presented at international conferences and contributed extensively to the field. His practical experience, combined with his educational background in psychology and rehabilitation counseling, has shaped his innovative approaches to PWS caregiving.
Dr. Genstil developed PWOS as a comprehensive model for PWS care, crafted from over 45 years of specialized expertise.
Painstakingly refined over his career, Dr. Genstil has broken down his vast knowledge into a structured sequence of modules, each one addressing a critical area of PWS management.
This comprehensive system guides caregivers and professionals through essential aspects of care, empowering them to provide compassionate, effective support.
Gain a strong foundation in PWS caregiving
Build confidence in managing daily challenges
Discover pathways for continuous learning
Make a real impact in the lives of those with PWS
Comprehensive Overview of PWS Care
Access a thorough introduction to essential PWS caregiving strategies across 16 core modules, giving you the tools to understand and address common challenges.
Clear Guidance on Complex Cases
Learn when to seek further training or consult specialists, helping you make informed decisions and manage PWS care responsibly.
Flexible Learning Pace
Complete the guide at your own speed, revisiting modules whenever you need a refresher or additional clarity on specific topics.
Opportunities for Further Growth
Discover the next steps in your PWS education, from advanced courses to consultation options, tailored to equip you for more complex care needs.
Supportive Community Access
Alongside the guide, gain access to the Prader-Willi Collaboration community, where you can connect with other caregivers & professionals, share experiences, and receive support.
The Prader Willi Optimization System includes access to the Prader-Willi Collaboration online community where we are dedicated to building a supportive, knowledgeable, and collaborative PWS network for families, caregivers, and staff of individuals with Prader-Willi Syndrome (PWS). We believe that the best solutions arise when caregivers, families, professionals, and PWS specialists work together to share insights, support each other, and find effective ways to overcome the unique challenges of PWS.
In many areas, families, caregivers, and staff lack easy access to specialized PWS knowledge and support. The Prader-Willi Collaboration fills this gap, providing a safe space where members can connect, exchange ideas, and find expert guidance—all in one place.
Our online community brings families, caregivers, and staff the tools, resources, and encouragement they need to foster better care and brighter futures for individuals with PWS.
Collaborative Support System
Connect with other caregivers, families, and professionals who understand the unique journey of PWS care, providing a network of encouragement and shared experiences.
Expert-Led Guidance
Access direct insights from Dr. Genstil and other PWS specialists, who are available to answer questions, offer advice, and share practical strategies for daily care and behavior management.
Real-World Problem Solving
Bring your toughest challenges to the community, where you can discuss and develop solutions together, learning from the experiences of others who have faced similar situations.
Interactive Webinars and Q&A Sessions
Participate in live sessions with specialists to delve deeper into PWS topics, gain fresh insights, and ask questions directly, enhancing your understanding and confidence.
Emotional and Social Support
Find solace and support in a compassionate environment where members can openly share struggles and celebrate wins, reducing caregiver burnout and fostering resilience.
Continuous Learning Opportunities
Stay informed with the latest in PWS care through regular community updates, workshops, and specialized content to keep you empowered and knowledgeable.
As a lifelong advocate and specialist in Prader-Willi Syndrome care, my mission is to empower caregivers, family members, and professionals with the knowledge, resources, and support they need to transform the lives of individuals with PWS.
Through the Prader-Willi Collaboration and the Prader-Willi Optimization System (PWOS), I aim to build a community where PWS families, caregivers & professionals feel equipped, connected, and confident in their journey.
Empowered Caregiving
I believe in fostering a community where caregivers and professionals uplift one another, share valuable insights, and achieve success together, creating a positive and supportive network.
PWS Expertise
The PWOS system provides a comprehensive framework for mastering the complexities of PWS care, making experienced insights and practical strategies accessible to everyone involved in PWS caregiving.
Innovative Support & Learning
I am committed to delivering advanced training programs and resources that adapt to new research, ensuring that caregivers & staff have the latest tools for providing optimal care.
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This website is for educational purposes only
and does not constitute clinical or medical advice.